Scientias · Science

Caregivers severely neglect their own well-being

Twenty years of research with over 80.000 caregivers worldwide shows that they severely shortchange themselves in terms of mental health and well-being.

Caregivers prioritize the patient's needs over their own, which leads them to downplay their own mental health issues and rarely seek psychological support.

The study analyzed 29 studies from 2005, with caregivers from various countries, predominantly women caring for a partner with serious illnesses.

They sought help with grief processing, feelings of guilt, social contacts, and relationship changes.

Globally, one-third want counseling but rarely receive it. Help from social workers and government provisions is also received less than desired.

Practical barriers, psychological mechanisms, lack of identification with the label 'caregiver', and stigma play a role.

Researchers advocate for structural screening and referral to effective support to ensure the well-being of caregivers.

Depression and anxiety are more common. Without support, stress builds up, leading to poorer well-being and reduced care capacity.

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