Futurity · Health

Most Older Adults with Dementia Don't Report Their Diagnosis

A new study reveals that a significant majority of older Americans with a dementia diagnosis in their medical records do not report being told they have the condition.

Researchers found that about 67% of respondents with probable dementia in their records reported no doctor had informed them, far higher than for high blood pressure (23%) or arthritis (17%).

This suggests many diagnosed patients may not be receiving critical medical services related to their dementia.

The study analyzed US survey data linked to Medicare claims for individuals aged 65+ with probable dementia.

Underreporting was highest (82%) early after diagnosis and more common among those living alone, with less education, lower incomes, and among Black older adults.

Patients who underreported were less likely to visit a doctor, get a flu shot, or have a will.

The findings suggest stigma, difficulty accepting the diagnosis, and inadequate communication from the healthcare system.

A diagnosis is only useful if understood and acted upon, requiring clear communication from clinicians.

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